So I’ll start with a bit of a back story incase you didn’t know the story of my Daughter, Elsa and her Uncle, Rory. In January 2015, Elsa and Rory were both born with 17 days between them. So Uncle and Niece both born within 3 weeks of each other, it was always going to be a unique experience from the offset.
We live in a time where if you need advice or help, you can simply look online. Google and social media can act as your agony aunt, there are so many influencers and bloggers now of all different niches which mean there will be someone that you can relate to and potential get advice from.
You can switch the TV on and the chances are that you will see a person with a disability. It is brilliant that finally after so long that TV is more ‘real’.
Whether you love Mr Tumble or not, you have to agree that he has done amazing things for children with disabilities.
Support for parents who have a baby in NICU.
You see it in every hospital and that is fantastic.
But what about us? The siblings that get left behind. Just standing in front of NICU doors.
A while ago I wrote a post similar to this about what you wish people knew about Down Syndrome.
Back at the beginning on September, I had the idea to create a awareness video that was aimed at siblings of those with Down Syndrome.
When a child has illnesses and needs that require extra such as medication or equipment, it can be very uninteresting to the child.
As soon as I start talking about Rory, I can hear people saying, ‘Here she goes, the Down Syndrome Expert’.
The meaning of the word, inspire is to fill someone with the urge or ability to do or feel something.