Support for parents who have a baby in NICU.
You see it in every hospital and that is fantastic.
But what about us? The siblings that get left behind. Just standing in front of NICU doors.
A sibling in front of NICU doors.
Category: Being a Down syndrome advocate
What the Down Syndrome community wish you knew.
A while ago I wrote a post similar to this about what you wish people knew about Down Syndrome.
Continue reading “What the Down Syndrome community wish you knew.”
#NothingIWouldntDo Down Syndrome Awareness – A Siblings Love
Back at the beginning on September, I had the idea to create a awareness video that was aimed at siblings of those with Down Syndrome.
Continue reading “#NothingIWouldntDo Down Syndrome Awareness – A Siblings Love”
Niamhs Neverland review – Emergency seat belt cover & Inhaler wallet
When a child has illnesses and needs that require extra such as medication or equipment, it can be very uninteresting to the child.
Continue reading “Niamhs Neverland review – Emergency seat belt cover & Inhaler wallet”
The Judgement of a Down Syndrome Sibling Advocate
As soon as I start talking about Rory, I can hear people saying, ‘Here she goes, the Down Syndrome Expert’.
Continue reading “The Judgement of a Down Syndrome Sibling Advocate”
Introducing Letters 2 Siblings
A while ago I realised that naturally there was so much more support out there for new parents that have just received a diagnose of Down Syndrome for their baby.
Everything my unwell brother inspires me to be
The meaning of the word, inspire is to fill someone with the urge or ability to do or feel something.
Continue reading “Everything my unwell brother inspires me to be”
Dear Brother, I can finally breathe…
And breathe.
Dear Brother,
As soon as I hear that you are poorly, my brain goes in to over drive but at the same time I feel like I can’t breathe.
The reality of having a sibling with additional needs.
Being a sibling to someone with additional needs is like being in a secret club. Some things only fellow siblings will understand. Continue reading “The reality of having a sibling with additional needs.”
Lose it, Don’t use it! – The R Word!
Before I ramble on about what I think of you if you use the R word, I’m going to educate you on the word first. Continue reading “Lose it, Don’t use it! – The R Word!”
