I guess I have answered my own question in the title of this blog because being exhausted isn’t normal, is it?!
Lately, life has been kicking my arse. Well, that is what it feels like anyway. The constant juggle of children, home, family and work has really got to me. Juggling is something that I am not very good at. I can manage to do a few things at once but with Cleo becoming more poorly over time. It is harder for me to keep my head above water and keep up with the to do list that just keeps getting stuff added to it.
I have stopped updating on Cleo now as I never really know what to say. She has Idiopathic Ketotic Hypogylcemia (IKH). A diagnosis that has taken way over a year and a hell of a lot of hospital visits to get. At the moment, her blood sugars are very very unstable. They are causing seizures and it is becoming harder to send her to school as it just isn’t safe. So a decision has been made to keep her off school until we know more.
This whole thing is making me exhausted. I am constantly worried and chasing test results and hospital appointments. I feel like I need to be here, there and everywhere. I am always on the look out for signs for Cleo that could mean that a hospital stay is needed. I know where everything is that we would need for a hospital stay. I need to be looking for alarms and sensor reading to see if she needs treatment. We carry everything with us at all times.
As well as this, I also have 2 other children, a home, a family, a husband and I am trying to have a career.
I am getting more and more exhausted and I don’t know what I am meant to do about it.
The Coastal Mummy 
Ah, tough moment. Have a hug. The situations vary, but many working parents can identify with this. Sometimes you have to drop one of the balls for a couple of years till things get easier and you can pick it back up. Have another hug. You’re doing amazing stuff and something will ease, at some point. Meanwhile, see where you can ease off for a while, where you can streamline or offload. Grab every bit of support offered. Have another hug.
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Sending love and hugs.
I know nothing about Idiopathic Ketotic Hypogylcemia but it sounds so stressful. When you have a child that is ill and you are chasing test results, going to hospital appointments and everything is uncertain, it’s draining. My girls had issues with their hearts when they were little which resulted in open heart surgery and I spent the whole time exhausted. I know it’s not the same but I understand the exhaustion. I don’t really have any advice apart from hang on in there. I hope you get some answers soon and your daughter is OK. x
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