It might not have been the day that we thought it would be but it was still amazing.
Continue reading “World Down Syndrome Day 2021!”World Down Syndrome Day 2021!
Category: Being a Down syndrome advocate
Why We Celebrate World Down Syndrome Day
Another year. Another World Down Syndrome Day. But why do we celebrate it?
Continue reading “Why We Celebrate World Down Syndrome Day”The Reality of Having a Sibling with Down Syndrome in a Pandemic
If you haven’t been on my blog before, I have a brother with Down Syndrome. It seems like forever since I last wrote about him and my life with a brother with Down Syndrome.
Continue reading “The Reality of Having a Sibling with Down Syndrome in a Pandemic”A Letter To Rory As He Starts School
I wrote this post but it comes across as being from the perspective of a parent. Continue reading “A Letter To Rory As He Starts School”
Almost 5 years of Down Syndrome Advocacy
I have been thinking about how long I have been a Down Syndrome advocate. Should say I have been one since Rory was born or did I start becoming one when we found out Rory may have Down Syndrome? Continue reading “Almost 5 years of Down Syndrome Advocacy”
For the Love of Oscar – Sarah Roberts Book Review
Being a Down Syndrome advocate is a huge part of my life and it has been a huge part of the journey of my blog. When Rory was born, we were thrown in at the deep end and over the last 4 years, we have grown so much as a family and been on this wild adventure that is learning all about a life that includes Down Syndrome. From the very beginning, we started to follow a blog called Don’t Be Sorry . Now Sarah, the wonderful mummy behind the blog, has released her own book and this is what I think! Continue reading “For the Love of Oscar – Sarah Roberts Book Review”
What it means to me to be a West Norfolk Champion
For a couple of weeks, I was keeping a secret from everyone and it wasn’t that I was expecting a baby! Continue reading “What it means to me to be a West Norfolk Champion”
Power of Social Media – Down Syndrome Awareness
Over the past year or so, Down Syndrome awareness has grown. It has reached millions and millions of people across the globe. Some people may not even realise that they have helped pave the way for DS awareness.
Continue reading “Power of Social Media – Down Syndrome Awareness”
Being positive about Down Syndrome
In a world where there is so much negativity, lets just be positive. Continue reading “Being positive about Down Syndrome”
Why I am open with my Daughter about her Uncle’s diagnosis
So I’ll start with a bit of a back story incase you didn’t know the story of my Daughter, Elsa and her Uncle, Rory. In January 2015, Elsa and Rory were both born with 17 days between them. So Uncle and Niece both born within 3 weeks of each other, it was always going to be a unique experience from the offset.
Continue reading “Why I am open with my Daughter about her Uncle’s diagnosis”
